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Wandering with Willow

In honor of our daughter Willow, we give families affected by Rett syndrome the freedom to wander — one van at a time.

A note about Willow

Rett syndrome is a rare neurological disorder that affects nearly 1 in every 10,000 girls and very rarely in boys.  Willow's diagnosis changed our world — and showed us how much a simple van ride can mean to a family that rarely gets to go anywhere together.

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© 2026 Wandering with Willow. A 501(c)(3) nonprofit organization.